Her Neck Goes Out All the Time: Definitive Treatment?

by Chris Centeno, MD /

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neck goes out all the time

Every physician has patients who challenge his or her skills, and it’s the reaction to those patients that determines what kind of doctor that physician is —Chris was one of those patients. She would tell me consistently that “my neck goes out all the time,” but every tool I had to use couldn’t seem to really put a dent in that phenomenon. In fact, it wasn’t until I invented a new procedure to get access to obscure neck ligaments that hold the head on that things changed.

What Does “My Neck Goes Out” Even Mean?

Like many MDs, for most of my career, the concept of BOOP (bone out of place) has been a bizarre and even threatening one. However, all of that changed when it began happening to me. So why does a patient saying “my neck goes out all the time” sound crazy to an MD?

We MD physicians can be arrogant bastards when we don’t know what we don’t know. Meaning that for any professional, there’s the world of what you know and the world of what you know you don’t know. However, what blindsides you is if the stuff you can’t fathom exists. BOOP is in that place for an MD.

The idea of a neck or back “going out of place” seems foreign to us because in our world, we were taught that instability is a binary concept (a joint in the body is either stable or unstable). If it’s stable, it’s fine; if it’s unstable, it will fall apart on its own or that instability is easy to see on X-rays or on an exam where you try to move the joint.

An example of this binary thinking about instability is an anterior cruciate ligament (ACL) in the knee. Surgeons often consider an ACL to be “intact” or “ruptured,” a binary concept like “on” or “off.” However, the ACL, like any ligament, is made up of hundreds of thousands of individual fiber bundles, and it, of course, can be “loose” when some of those fibers are injured and some are left intact. However, this frankly flies over the heads of most surgeons, who were never taught to think that way. As a result, BOOP sounds like alternative-medicine mumbo jumbo to them. If a spine bone were “out of place,” it should be dislocated, and that would be easily seen on an X-ray as some catastrophic misalignment. However, in this case the surgeons don’t know what they don’t know.

Prima Facie Evidence That the Neck and the Back “Go Out”

These past few years, I began to understand what patients tell me when they say, “My neck goes out all the time.” First, I began to experience “crepitus” in my neck and back, or what feels like the spine bones are “moving.” These abnormal movements can certainly lead to episodes that cause severe pain. So what’s happening as interpreted by a physician who knows the spine research? The term is called, “degenerative instability.”

My neck and back ligaments are getting loose as the discs degenerate with age as well as a lifetime of wear and tear. In addition, the small muscles built to stabilize the spine are intermittently getting turned off, leading to even sloppier movement. Hence the individual spine bones (vertebrae), stacked one on the other, can get into awkward positions where a spinal nerve gets pinched or a facet joint or disc gets suddenly damaged. This is what my patients have been relaying through the years when they tell me things like, “My neck goes out all the time.”

Chris’s Neck-Instability Story

Chris has been a patient of mine for more than a decade. In that time, she has told me many times that her “neck goes out all the time.” Early on in her care, when I didn’t know personally what that meant, I at least knew that what she was describing was some type of instability. Over those years, we tried countless physical therapy visits for strengthening and manual medicine. She also tried chiropractic, massage, acupuncture, trigger-point dry needling, trigger-point injections, etc. I also injected her neck many times with prolotherapy-type treatments meant to tighten loose ligaments as well as injections around nerves (epidurals) and into painful joints (facet injections). While some of this helped, nothing really changed her instability.

I recently blogged about a new procedure that targeted the obscure ligaments that hold the head on —alar and transverse. Of all of the patients in my existing practice, I knew we were missing something with Chris, and what we were likely missing was the ability to inject directly and tighten loose alar and transverse ligaments. However, until recently, that remained a pipe dream as there was no way to inject these ligaments from the traditional approaches. Then about 14 months ago, I pulled the trigger on the first case of a new procedure I invented that accesses these ligaments through the back of the throat (posterior oropharynx). However, Chris had had this severe instability for so long, could this procedure possibly help, or were we too late? She took the plunge in November of last year, and this is the e-mail I got yesterday:

“The back of mouth injections have helped a lot, much more than anything else, including other injections you’ve done.   

Other injections helped 15%, these 75%. (very rough estimates)
My upper cervical still “goes out” but when it does, it moves less and causes less pain and dizziness. Also, it takes more (bigger road bumps e.g.) to push it out. So I’m able to do more with less pain. 
The pain is still there. Right now it’s “out” and I feel a bit dizzy, confused, slight headache and dull pain, but it’s not severe. I can live with it and try to ignore it, which I couldn’t before. Other changes from pre-injections: My UC will sometimes correct on it’s own, and I’m better able to manually correct things myself. Before, things were just too loose and there were too many vectors and combinations of ways my C1-3 could go out that I often couldn’t figure out how to correct. Also, before injections there were more lower cervical involvement (C3 on down). Now, it’s mostly 1 and 2 and usually in the same way (shear right, rotate left)
Chris West (her PT) says sub-occipital muscle tension is much less. He was the one who helped me out of the flare-up. The trick: mostly working on dry needling tense neck muscles, and only a few at a time. It’s as if my muscles didn’t know what to do with the changes from the injections. So they had to be coaxed here and there to let go and allow things to normalize.  
The first couple weeks after the injections in NOv. 2015 I felt great. It’s like a warm soothing energy was filling the inside of my spinal cord near the base of my skull. That area felt more alive. I had a minor headache a few hours after, none after that. Then about 5 weeks out my neck would get into very weird positions, the C1 getting pulled out of place and it would stay there, worse than before the injections. My theory: things were tightening and so when my UC slid around the compression was greater and so I felt much worse pain and dizziness. Again, my theory —this was caused by UC muscles not figuring out what to do. Chris West’s very specific dry needling on only 2–3 muscles (every other week) is what turned things around. My muscles (SOC, IOC, rectus capitus especially) were pulling in strange ways and causing things to go out.
So, it’s like the golden gate bridge. You fixed some of the major guy wires so the bridge doesn’t flop around as much. As a result, some minor guy wires had to be adjusted with dry needling. There’s still more guy wires that are not tuned properly. I don’t know if they’re muscles or ligaments but I should have a better sense of that by the end of the summer. But overall, the bridge stays in place better and can hold traffic more reliably. Fewer cars falling off the bridge : )”

So what Chris describes is that after a honeymoon period and then after an adaption period where her muscles had to relearn how to deal with a more stable upper neck, this procedure has been a game changer for her.

The upshot? Happy Mothers Day to Chris! The idea that your neck or back can go out is a real thing due to instability and loose ligaments. While oftentimes this can be taken care of by chiropractic or other types of manipulation or simple shots to tighten ligaments (prolotherapy), that only works when the area is stable enough to hold or you can reach those ligaments. When the ligaments are like the ones that hold the head on, then new procedures must be invented to get access to them. In Chris’s case, finally reaching those ligaments after more than a decade of other treatments has made a big difference!

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13 thoughts on “Her Neck Goes Out All the Time: Definitive Treatment?

  1. Sam

    I think taking a muscle relaxant, with an appropriate dosage as need be, would help muscles to better adjust themselves with the gradual restoration of normal anatomy pursuant to a treatment on sensitive areas

  2. Sam

    Accessory ligaments, Apical ligament and Tectorial Membrane are often injured in these type of injuries as well. Are these ligaments/Membrane accessible for injection or they are too deep and/or too close to the nervous system?

    1. Regenexx Team Post author

      Sam,
      The apical dens is also treated as is the tectorial membrane. Accessory ligaments can also likely be treated. The patients we’re talking about here have tried everything from muscle relaxants to narcotics – they do little to help. The muscles are tight because of the instability, so muscle tightness is just a reaction.

  3. Allison S

    Sorry to hear you’ve become one of my “my neck goes out all the time” peeps! But selfishly, I’m glad you get it :0)
    I’ll be in for my “fix” as soon as I save up the $$. Lord knows this has been a long 10 years.
    Your fellow boop,
    Allison S

    1. Regenexx Team Post author

      I’m glad I get it too, Allison…puts me in good company!

  4. chris

    If someone needs regular chiropractic manipulation to put their neck “back into place” , how does that impact the way you treat. For example, someone gets a stem cell injection but in early stages of healing still needs an adjustment, will the force(moderate amount) of that adjustment prevent healing in the injected ligaments?

    1. Regenexx Team Post author

      Chris,
      We see no issues with intermittent chiropractic adjustments while ligaments heal.

  5. Bryon Winkelman

    I have been dealing with this heavily for the last 2 years. I had 2 artificial disc replacements at C5-C6, C6-C7 with M6 ADR and couldn’t figure out what was happening, been disabled since. I found the instability on DMX motion X-ray. I have had 3 Prolo therapies and 1 PRP to the entire neck. Success has been minimal.

    My symptoms are pain at base of skull, dizziness, constant headache, pain in front of throat above Adams Apple just below jaw. I also get feelings of passing out when I stoop down to pick something up. I now have to wear a soft collar to do any bending tasks to support my head. I am sure I have this lax ligament problem. I used to “self-manipulate” my neck all time. I had a CCV MRI done which didn’t show any tears or direct damage to the Alar Transverse ligaments thank God, hopefully they are just lax.

    My question is how much does this procedure cost, and how do you choose your candidates? I have heard Dr. Centeno requires specific procedures to be done to the posterior neck first before performing this? If the symptoms match the diagnosis and the DMX X-ray finds it, why must a patient spend more money on expensive treatments and endure more months of suffering needlessly?

    Dr. Centeno says himself, he treated this woman for 10 years, I assume with PRP and stem cells to her posterior, before this one treatment in his new technique gave her some relief? Can Dr. Centeno do a physical examination combined with clinical history and imaging to make a near 100% positive diagnosis that the anterior ligaments are the main culprit in disability?

    1. Chris Centeno Post author

      Bryon, we keep patients safe by exposing them to the least risk that will help their condition. Hence we start with less risky facet injections and posterior (from the back) ligament injections with guidance, which sometimes work well. If that doesn’t work and the diagnostic work up, history, and exam all point in the direction of a CCJ ligament problem, then and only then do we expose patients to the risk of an experimental procedure. We will likely be starting a randomized controlled trial which will be no cost, but that RCT will randomize patients to either get the real procedure or a fake procedure. Everyone who got the placebo procedure will get the real procedure at the end of a 6 month period, but there is a risk of getting nothing done and having to come back. Stay tuned…

      1. Mrtrouble

        can i sign up for this? im desperate for a cure ..

        1. Regenexx Team Post author

          Mrtrouble,

          If you’d like to be evaluated as a Candidate, please fill out and submit the Candidate form:http://www.regenexx.com/the-regenexx-procedures/back-surgery-alternative/

  6. jay

    when you say ” risk of an experimental procedure” what exactly are the risks?

    1. Regenexx Team Post author

      jay,

      The biggest risk of a new procedure is not yet being able to accurately quantify all of the risks…

Chris Centeno, MD

Regenexx Founder

Chris Centeno, MD is a specialist in regenerative medicine and the new field of Interventional Orthopedics. Centeno pioneered orthopedic stem cell procedures in 2005 and is responsible for a large amount of the published research on stem cell use for orthopedic applications.
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